Challenges in Stem Cell Research and Genome Editing

Monday, June 26, 1:30 AM – 4:30 PM

Beth E. Roxland, J.D., M.S. Bioethics, Senior Advisor on Law, Bioethics, and Health Policy; Associate, Division of Medical Ethics at NYU Medicine

Reading List:

Everything you want to know about Stem Cells, by ISSCR:

http://www.isscr.org

NIH’s primer on stem cells and stem cell biology:

http://stemcells.nih.gov/info/basics/Pages/Default.aspx

Should Unclaimed Frozen Embryos be Considered Abandoned Property and Donated to Stem Cell Research?Roxland, B., Caplan, A., 21 B.U. J. Sci. & Tech. L. 108 (2015), https://www.bu.edu/jostl/files/2016/01/21.1_Roxland_Final_web.pdf

Sherley v. Sebelius (U.S. Federal Court lawsuit against NIH Guidelines) (D.D.C. 2009; D.C. Cir. 2010; D.C. Cir. 2012)

https://www.courtlistener.com/opinion/149495/sherley-v-sebelius/

http://caselaw.findlaw.com/us-dc-circuit/1610270.html

Feminists Choosing Life v. Empire State Stem Cell Bd., 87 A.D.3d 47 (N.Y. App. Div. 2011) (Lawsuit filed against New York State funding for egg donation to stem cell research protocols)

https://scholar.google.com/scholar_case?case=11980317138308110538

Scientists hope the chimera embryos represent key steps toward life-saving lab-grown organs:

http://news.nationalgeographic.com/2017/01/human-pig-hybrid-embryo-chimeraorgans-health-science/

A Cautionary Tale of “Stem Cell Tourism”:

https://www.nytimes.com/2016/06/23/health/a-cautionary-tale-of-stem-cell-tourism.html

Texas H.B. 810 “Charlie’s Law” (Stem Cell ‘Right to Try’ Law), https://legiscan.com/TX/text/HB810/id/1625428

Broad Institute’s Questions and Answers About CRISPR

https://www.broadinstitute.org/what-broad/areas-focus/project-spotlight/questions-and-answers-about-crispr

A panel approving in theory CRISPR modification of human embryos for disease prevention:

https://www.nytimes.com/2017/02/14/health/human-gene-editing-panel.html